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Raising awareness for baby yujia


Little_prince
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(edited)

Apologies in advance if this is not allowed

 

This is damm heart breaking

 

My wife and I also have a young daughter. We just donated too.

 

just want to share with you guys

 

 

https://life.indiegogo.com/fundraisers/save-baby-yujia-help-her-eat-by-her-mouth

 

Baby Yujia is born with long gap esophageal atresia and multiple anomalies. It is a rare birth defect that unfortunately happens to her. She is not able to eat anything since her birth til now because her esophagus is not connected to her stomach. This requires definite surgery to join them together. It may sound simple but unfortunately it is not as easy as it seemed. She has been staying in hospital pretty much most of her life and recently just discharged but this is not the end of the story.

 

To help you understand more about her condition and why we need your donation, we have made a video that self explains our current situation. Below is the video link:

 

 

 

Thank you for spending time reading and watching this. Please help to share :)

 

We really appreciate your kindness and hope that you can help us share our story and reach our goal.

 

Your kind donation will help Baby Yujia to finally be able to eat by her mouth.

 

What We Need

 

The Surgery medical bills is estimated at 1.3million USD. As we are not US citizen, we are not covered by any insurance should we go to Boston Children's Hospital for treatment. We hope to raise enough funds to her our baby girl to get her esophagus fixed and we really hope to see her eat by her mouth soon. Thank you very much!

Edited by Little_prince
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(edited)

I knew about this about a week ago. Had made a small donation to the crowd funding. Heart to heart....and as parent myself. I do understand the parent's wish to send their baby oversea so that she receive the best treatment or should I say...the only treatment and hope for their baby to recover fully from the condition.... Hope members here chip in. No sum is too small for help.

Edited by LoverofCar
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(edited)

Apologies in advance if this is not allowed

 

This is damm heart breaking

 

My wife and I also have a young daughter. We just donated too.

 

just want to share with you guys

 

 

https://life.indiegogo.com/fundraisers/save-baby-yujia-help-her-eat-by-her-mouth

 

Baby Yujia is born with long gap esophageal atresia and multiple anomalies. It is a rare birth defect that unfortunately happens to her. She is not able to eat anything since her birth til now because her esophagus is not connected to her stomach. This requires definite surgery to join them together. It may sound simple but unfortunately it is not as easy as it seemed. She has been staying in hospital pretty much most of her life and recently just discharged but this is not the end of the story.

 

To help you understand more about her condition and why we need your donation, we have made a video that self explains our current situation. Below is the video link:

 

 

 

Thank you for spending time reading and watching this. Please help to share :)

 

We really appreciate your kindness and hope that you can help us share our story and reach our goal.

 

Your kind donation will help Baby Yujia to finally be able to eat by her mouth.

 

What We Need

 

The Surgery medical bills is estimated at 1.3million USD. As we are not US citizen, we are not covered by any insurance should we go to Boston Children's Hospital for treatment. We hope to raise enough funds to her our baby girl to get her esophagus fixed and we really hope to see her eat by her mouth soon. Thank you very much!

 

Saw this on FB posting too.

It also came up on straits time too.

Then saw some commented that why not have the surgery in Singapore.

I guess those who made those comments aren't parent yet.

This type of surgery should be very high risk and if the US hospital is the best, then by all means go for the best, let the crowdfunding do the job.

 

It could likely be an advice given the baby Yujia local paediatrician to seek such surgery there.

Edited by Atonchia
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Turbocharged

Saw this on FB posting too.

It also came up on straits time too.

Then saw some commented that why not have the surgery in Singapore.

I guess those who made those comments aren't parent yet.

Not only are they not parents, they are blind never read carefully.

 

Yujie already had a few surgeries at KKH to correct the defect but non was fully successful and had complications. I think it's the best the doctors in SG can do liao.

 

As for overseas, it's private and foreign hence the cost is astronomical!

 

Overseas may not be 1successful but it's a gamble they had to take.

 

At this point, there's no turning back, no giving up, you just go as deep as the rabbit hole takes you.

 

I salute the parents of those involved, hope they say strong all the way...

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Neutral Newbie

Saw this on FB posting too.

It also came up on straits time too.

Then saw some commented that why not have the surgery in Singapore.

I guess those who made those comments aren't parent yet.

This type of surgery should be very high risk and if the US hospital is the best, then by all means go for the best, let the crowdfunding do the job.

 

It could likely be an advice given the baby Yujia local paediatrician to seek such surgery there.

The video explains a few things, i will try to summaries some of the points:

1. Yujia have other health issues, but this surgery address her biggest problem and lessen her dependency on medicine and equipment.

2. She cannot eat on her own, and there are tubes inside her for feeding and draining other stuff out. Because of this she is dependent on medication for the infection.

3. This will not stop until she has a successful surgery.

4. She already had a few surgeries in singapore to correct her problem. However her case is very complex and the doctors here cannot do anything more to help her. Boston is her only option right now.

 

This is based on my own understanding after watching her video, i will suggest to watch it if you are interested to know more.

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Hypersonic

Donated last week. Poor baby had to undergo so many op at such a young age.

 

Singapore has no answer for her rare condition so had to go US.

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The video explains a few things, i will try to summaries some of the points:

1. Yujia have other health issues, but this surgery address her biggest problem and lessen her dependency on medicine and equipment.

2. She cannot eat on her own, and there are tubes inside her for feeding and draining other stuff out. Because of this she is dependent on medication for the infection.

3. This will not stop until she has a successful surgery.

4. She already had a few surgeries in singapore to correct her problem. However her case is very complex and the doctors here cannot do anything more to help her. Boston is her only option right now.

 

This is based on my own understanding after watching her video, i will suggest to watch it if you are interested to know more.

I've already read of her condition.

Just cannot understand why people can be so causal on their comments(on straits time forum), some said not going to Boston would not require millions of dollars.

 

 

As my kid is only slightly older than Yujia, going on a short 4hrs flight was already quite a task. So bringing her to Boston is almost a full day flight not including transfer, and with her medical condition, it is definitely not a simple economy seat.

 

Thus it's definitely the only choice of hope for her to seek treatment there.

 

Let's hope the crowd funding can reached the targeted amount soon.

Will be making my small contribution too.

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Turbocharged
(edited)

This is the ST Article.

Mum in crowd-funding drive to raise $1.7m for baby's operation

 

THE sum of US$1.3 million (S$1.7 million) is an astounding amount to be asking strangers for.

But the kindness of strangers is exactly what Madam Jamie Chua is banking on to pave the way for her toddler to have the surgery she needs.

At just 21 months, Xie Yujia has suffered multiple operations, a collapsed lung, a seizure and a detached retina.

Her biggest problem is a congenital defect - her oesophagus, or food pipe, is not connected to her stomach.

Madam Chua, 30, has started a crowd-funding effort on Indiegogo to raise the necessary funds for Yujia to have reconstructive surgery at the Boston Children's Hospital in the United States, which specialises in treating such defects.

"I was told before delivery that the baby might have a block in her food pipe, as she couldn't swallow amniotic fluid," recalled the housewife.

Tests revealed the far more serious problem of oesophageal atresia, which happens in about one out of 2,500 births.

A day after she was born, she was wheeled into the operating room for surgery, but her oesophagus was too far from the stomach to be joined to it.

For the next five months, Yujia was fed through a tube to her stomach and needed another down her throat to remove the saliva which might choke her.

She had corrective surgery in February last year and went home a month later for the first time, but complications, such as infections, continued to dog her.

That April, after a second procedure to widen her oesophagus, it ruptured and the gastric juice that leaked into her lungs caused her left lung to collapse.

Back into hospital she went. Finally, in February, she was well enough to go home with her mum and dad, Mr Xie Wen Long, 40, a self-employed event organiser.

Madam Chua said the dreaded process of sticking a tube down Yujia's throat every few hours is the main reason she would like her daughter to have reconstructive surgery.

"Feeding her through a tube to her stomach is okay, but I can't see her go through the suction process," she said.

When she heard the amount needed for the surgery in Boston, her heart dropped as she had thought it would cost the same amount as the surgery in Singapore, which was about $300,000.

Her Indiegogo campaign had received US$35,200 as of last night.

http://www.straitstimes.com/news/singapore/more-singapore-stories/story/mum-crowd-funding-drive-raise-17m-babys-operation-201506

 

 

Another alternative crowdfunding page is at http://giveasia.org/donate/new/557bcb0f8bdfee4718001a4d/0

 

This is a local Singapore owned website

Edited by Shull
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(edited)

Dear fellow bros....lovers or haters; allow me to play the devil's advocate & go straight to the point.

 

USD1.3M to try to save a toddler full of other medical problems......If the operation is done & successful, will the little girl be able to live normally & will the parents able to cope taking care of her needs which is both physical & mentally straining.....how about future medical expenses? Looking at the video, both the parents are very young....they can still be someone's father & mother....no doubt it is a little life, the love & bond is priceless....but when you have to let go...you let it go.

 

USD1.3M can save a lot lives elsewhere in the world. These are also someone's children. Their parents loved them no less than those in developed countries....

post-116534-0-58428000-1434644671_thumb.jpg

Edited by Leinad8919
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Hypersonic

ironically saw this on the same page ...

 

 

 

What will this money be used for? Scam? SG is rich enough.

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I would like to share this apparent true story that I found in my email sometime ago.

 

Arthur Ashe, the legendary Wimbledon player was dying of AIDS which he got due to infected blood he received during a heart surgery in 1983.

From the world over, he received letters from his fan, one of them conveyed: "Why does God have to select you for such a bad disease?".

To this Arthur Ashe replied: “The world over - 50,000,000 children start playing tennis, 5,000,000 learn to play tennis, 500,000 learn professional tennis, 50,000 come to the circuit, 5000 reach the grand slam, 50 reach the Wimbledon, 4 to semi-finals, 2 to finals.

When I was the one holding the cup, I never asked God "Why me?".

And today in pain, I should not be asking GOD "why me?".

 

 

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